
It is amazing the strength you can possess in a time of crisis. All alone in Paris seven years ago, Damien and I were blessed with strength that was surely given to us by God. The surmounting stress, the life-saving decisions we had to make for Michael, and the feeling of isolation eventually grew to be a lot for us to handle. It was during this difficult time that we took comfort in the people who reached out to us. The ones who could see us struggling to stay afloat that helped us to safety. Some of these people were doctors, nurses, nuns, and US embassy employees. Others were the parents of other premature babies in the
NICU. However we were connected, these people became our family of sorts. Providing us with a safe place to talk, acting as a support system, and ultimately making it possible for us to support Michael and deal with our situation in a positive healthy way. We call them our friends- our family away from home, but I think that they are angels.

The last time we returned to Paris, we met up with a lot of people to say thank you and introduce to them a walking, talking, healthy Michael. The last time they had seen him- he was a four pound baby being wheeled out of the hospital in an incubator preparing to take a long flight across the Atlantic. How times change. This trip we made just a few appointments to see friends. We met up with the
Cassagne family for lunch just outside of Luxembourg Gardens. Back in 2001, Marie
Cassagne was born three days after Michael at 25 weeks 4 days gestation. Day in and day out, we prayed for her and Michael. In many ways, their struggle was the same. So fragile, so small, so many things that could have gone wrong. We befriended their parents Jean Marc and Karine and soon the four of us found strength in each other's fight. We knew what the other was going through. We could speak the complicated medical language and understand one another. For months- we helped each other up when the other was down. This emotional ebb and flow permanently bonded us beyond the shared experience of having premature babies. We were going to be friends for life. Our babies, little Michael and Marie, had never met each other. They lay just a few feet from each other in their own respective incubators and struggled to live and bless our lives. We joked with the
Cassagnes before we left Paris the first time that Michael and Marie would one day be married. From that point on, we referred to them as the other's fiancé. Our trip to Paris this time was the first time both of our children understood who the other was. Although Michael and Marie don't speak a shared language- they somehow get by with gestures and touch. Michael wasn't afraid to go over and put his arm around her. However, you could tell that he was a little shy because he thinks she is pretty (and she is!). By the end of the afternoon, they were paling around- pushing each other in a stroller and just having fun. To think that there was a time where neither family knew if they would survive . . . and now look at them. Our little miracles.

After lunch that same afternoon, the
Cassagnes and our big group (our family and Mark's family) met Dr. Christine
Mayou and her family in Luxembourg Gardens. Dr.
Mayou was a true blessing to us when Michael was born. She kept a high level of professionalism but also was able to relate to our situation and help us make some very important decisions. When Michael was first born, he was on life support. Having been incubated (used a breathing tube) for almost three weeks, the doctors really wanted him to transition from
intubation to another form of oxygen support. This step really needed to happen. One of our options was giving Michael a dose of steroids. We knew that these steroids would most
definitely get Michael off the breathing tube- but we knew it might come with a serious price. The studies weren't out yet but there was a pretty strong chance that the steroids would cause bleeding in the brain which could lead to cerebral palsy. What do you do? Do you try and help your child get off the breathing tube (which needed to happen) or do you help them by giving the steroids to ensure this happened? We were so torn and emotionally spent. That is when we talked to Dr.
Mayou about her opinion. She told us the statistics and the pros and cons. Then we asked her a difficult question, "If it was your son- would you administer the steroids?" Her answer was no. And that was that. We then decided that we needed Michael to muster up the strength to become
extubated and after a few days- he did it! Dr.
Mayou's advice was so instrumental in Michael's eventual recovery. When we saw her that day in Luxembourg Gardens, my heart wanted to burst because I care so very much about her. She feels the same and we make sure to keep in touch through email and letters. Every year she sends Michael a birthday card and even called us to come see her as she traveled through San Francisco the same year Michael was born. She is an amazingly brilliant, honest, compassionate woman and we are so blessed to have had her as a part of Michael's recovery. When we visited with her that afternoon, she told us that studies have now shown that there is a direct link from the steroids to cerebral palsy and that they DO NOT even offer the steroids as an option anymore. We both hugged her and thanked her for her brilliant advice seven years ago. And I swear in that moment, she got tears in her eyes and looked over at Michael and said, "He is perfect."

It was fun to not only be with our French friends, but to introduce them to Mark, Jocelyn and their kids. It kind of validated our experience in Paris by sharing it with our family from home. Not many of our friends and family have been able to see Michael's hospital or understand much of our situation because in so many ways- it is just too surreal. Damien and I took great pleasure in having our friends meet some of our family which I am sure helped them understand us better. The gorgeous afternoon in the gardens was spent eating ice cream, sailing mini sailboats (courtesy of Mark) and just sitting in a giant circle admiring the beauty of the day as well as the beauty of human kind. These wonderful French people let us into their hearts, into their lives, and we will never be able to thank them enough for the gift of their friendship.
Back in 2001, there were just a few of us. Now seven years later the
Cassagnes have two girls, Dr.
Mayou and her husband have a young boy and a little girl, and we have three children. While a lot has changed from seven years ago- none of us will ever forget the experience that bonded us all.